New Hospital Wing

New Hospital Wing

You may have noticed a few changes around here! Thank you to everyone who has donated, raised lots of money for our Make it Better appeal, you have all literally changed paediatric care for children today, tomorrow and years to come at Sheffield Children’s Hospital.

The new wing of our hospital opened with the Outpatient Department in November 2016 and the wards in April 2018. We were so excited to see what a difference your donations have made and here are few areas YOU have helped:

  • 13 clinical treatment rooms such as Action Lab, Growth & Measurement Suite, the Plaster Room and Occupational Therapy Room all of which have been sponsored by some very kind companies and supporters.
  • 46 single bedrooms and 6 four bed bays are literally breath taking and do not look like your normal every day hospital room.
  • New patient entertainment system, On surveying parents and patients, 73% wanted a bedhead TV with the option to use mobile device with Wifi. Each system costs £3,000 and the charity has provided funding for the units in the new wing of the hospital.
  • Play Tower, £400,000 was built to bring an element of play into the new wing of the hospital. Patients can go into the tower for distraction and fun, away from their hospital wards creating something exciting and adventurous to spot and be a place where they can have fun.
  • £400,000 funded two secure and safe outdoor spaces in the new wing of our hospital. This means our children and their families will have somewhere to play outside and get some fresh air.
  • £250,000 funded a brand new digital X-Ray in the new Outpatients thanks to the support of Westfield Health. This state-of-the-art system means that X-rays can be available in just four seconds, whilst the patient is still on the X-ray table. This additional X-ray in Outpatients will help improve the patient experience as they do not need to move around the hospital for an X-ray.
  • Physiotherapy equipment £72,000 was funded by lots of runners, walkers, swimmers, for two new Therapy Rooms. Physiotherapy & occupational therapy previously took place at patient’s bed side, as well as in public spaces such as the corridor and stairs, therefore creating a private rehabilitation space will help to make it more fun, whilst making it easier for patients to reach their goals. 
  • Artfelt has worked with the new wing team in many areas of the hospital adding artwork and a splash of colour. Numerous artists were commissioned to provide character based artwork to distract children in the Plaster Room, Treatment Rooms and Blood Tests Rooms as well as fun lenticulars to interact with as you wait. 

Digital X-Ray in Outpatients Department

Digital X-Ray in Outpatients Department

In 2013/14, a generous donation of £250,000 from the Westfield Health Charitable Trust funded a digital X-Ray in the new Outpatients Department.

The state-of-the-art system means that X-rays can be available in just four seconds, whilst the patient is still on the X-ray table. This additional X-ray in Outpatients will also help improve the patient experience as they do not need to move around the hospital for an X-ray.

Each scan has also been turned into a sensory experience. Special lighting and sound effects turn the x-ray room into a magical forest, helping to calm young patients. To create the special effects, the x-ray department worked with AGFA, the manufacturers of the machinery, and Artfelt. 

The system is estimated to be used over 15,000 times each year to take digital images of young outpatients arriving with potential bone problems in the hands, wrists, arms, feet, legs, pelvis and spine and also those needing chest x-rays to examine their lungs and abdomen.

Graham Moore, Chairman of the Westfield Health Charitable Trust said: “We have been a long-standing supporter of The Children’s Hospital Charity and we are delighted to be able to make this donation for such a fantastic piece of equipment. Sheffield Children’s Hospital is a wonderful facility and we are very lucky to have it in the city. I really hope the digital x-ray system will benefit patients for years to come.”

Play Tower

Play Tower

In Christmas 2016, we all went a bit elfy to fund a giant Play Tower in the new outpatients department of the hospital. This will be a child-friendly space where patients can go for distraction and fun, away from their hospital wards.

When children come in to hospital for a planned appointment or for a procedure they can often be quite anxious. The Play Tower will give them something exciting and adventurous to spot and be a place where they can play and have fun.

Every donation to the Christmas fund, up to a total value of £100,000, was matched by Graham Royle of GRI Group, effectively doubling each contribution.

Graham Royle, CEO of GRI Group said, “The Children's Hospital Charity is renowned for funding highly specialised technology for improving patients' treatment but less well known for its hugely important investments in patients' wellbeing. It is believed that relieving stress aids recovery, so this new play tower has massive medical benefits, as well as providing the children with lots of fun.”

Designed by Avanti Architects, the one-of-a-kind tower covers multiple floors and is covered in brightly coloured windows and furnishing – making visiting hospital an adventure for patients. The total cost for the Play Tower was £400,000

Bedrooms

Bedrooms

Working with acclaimed designer Morag Myerscough, we devised four colourways - from bright to calm - across all 46 en suite bedrooms and a different scheme for the multi occupancy bays in the hospital's newest wing.

This project was 2 years in the making and involved some technical challenges - using standard hospital materials in a new way - but we believe the rooms make a real difference to the experience of being in hospital.

“Although the rooms are for children I didn’t want them to be childish because children of all different age groups will be staying in them,” said Morag. “I also wanted to create somewhere parents would be happy to spend time too. It was just about making a bedroom that you felt good to be in.”

The project is part of numerous fresh commissions we're providing for the hospital's biggest ever re-development. 

Photos: Jill Tate

Wheelchair roundabout at Ryegate

Wheelchair roundabout at Ryegate

Staff and supporters of Sheffield Children’s Hospital raised £8,000 in 2016/17 for a wheelchair friendly roundabout in the playground of the specialist centre at Ryegate House.

Support worker Paula Widdowson spearheaded the fundraising campaign, facilitated through The Children’s Hospital Charity, to improve the play equipment in the Ryegate House garden.

“We’ve got a wheelchair swing for the children to play with but only one person can use it at a time so they all have to take turns,” said Paula. “We thought if we got a wheelchair roundabout more children could be playing rather than sat watching the others.”

The roundabout was purchased from Inclusive Play, a company which specialise in making play equipment that both disabled and fully able children can enjoy. It has enough space for two children using wheelchairs to play on at a time – and also has a small seated area for children who don’t require the use of a wheelchair.

“It’ll be so nice for the children to be able to use the roundabout and to feel the air on their face and the sensation of going round,” said Paula. “The children we look after love sensory lights and noises. Having the roundabout will mean that they’ll be able to do more out in the garden.”

“Play helps the children to interact more with our staff. Children come here every week and we try to make it like a home from home for them. We don’t just provide them with care, we like to do nice things with them like crafts or even things like making custard – it ends up going everywhere but the kids enjoy it!

3T MRI Scanner

3T MRI Scanner

The Intraoperative 3 Tesla MRI is an advanced technology imaging device funded for £2.3 million thanks to your support in 2015/16.

It can be used to produce images of the entire body and its rapid imaging during brain surgery assists the surgeon by providing them with more detailed information.

The 3T is part of a theaters redevelopment that makes the intraoperative suite one of the most advanced operating environments in the country, if not the world.

Hesham Zaki, Paediatric Neurosurgeon at Sheffield Children's Hospital, said: “This is a massive step forward. Our new intraoperative 3T MRI theatre is full of innovations including the most up to date neuronavigation equipment and will allow us to lead on the best outcomes for children’s brain tumours both in the UK and worldwide. Completely removing tumours which were previously inoperable is now a more realistic option.”

Nelson the prosthetic eye

Nelson the prosthetic eye

Nelson is a silicon eye model which helps teach patients and families insert and remove lenses and prosthesis, as well as explaining procedures including taking an impression of the eye.

It helps train the parents or carers who may have to insert contact lenses for their baby or infant if they are for example born with cataracts.

It was funded in 2016 thanks to your kind donations and is one of hundreds of smaller projects, which make a major difference to the lives of our patients.

Theatres

Theatres

Works by designers Thomas.Matthews line the theatres corridors to provide distraction for children during the anxious moments before they are anaesthetised. The focus of the work was to create something that would not only complement the state-of-the-art new theatres suites, but would bring cohesion to the old and new parts of the department. 

Patients range from aged 0 to16 years, therefore the scheme acts on multiple levels, providing tools for improvisation and dialogue, but without being patronising to older patients. The art culminates with a focal light boxes in the ceiling of each new anaesthetic room and a colourful mobile on route to the new 3T MRI scanner.

Fluoroscopy

Fluoroscopy

A life-saving machine designed to quickly spot blockages to blood flow was funded by the charity following the success of the Herd of Sheffield and patron Dan Walker’s annual golf day in 2016 as well as donations from Children's Champions.

The fluoroscopy system allows our radiologists to see moving X-rays, providing rapid diagnosis when every second counts. Vascular trauma can lead to serious blood loss and disruption to parts of the body and the time from diagnosis to treatment is critical. Loss of blood supply can cause tissue to die, meaning a child could lose their limb. In some cases it can even be fatal.

A continuous X-ray beam is passed through the body part being examined and the beam is transmitted onto a monitor, enabling surgical intervention with minimal scarring and without the child needing to go to theatre.

It is the gold standard for treating vascular trauma and by funding the best equipment available; it means our patients can be treated here at the Children’s Hospital after previously being transferred by air ambulance to Leeds. 

SPECT CT Scanner

SPECT CT Scanner

In 2017/18, we funded an £800,000 SPECT CT scanner which incorporates nuclear medicine gamma scanning (SPECT) with an inbuilt CT scanning function. 

This means images can be taken in two planes so radiologists can get the benefit of gamma and CT scanning in one session.

Improved diagnostic confidence means faster access to tailored treatments for the 26 areas that require gamma scanning each year.

For children with cancer, this means they may avoid unnecessary medicines and therapies that can leave them feeling extremely unwell.

Breast Pumps

Breast Pumps

Premature babies can get the potentially life-saving benefits of their mothers’ breast milk, thanks to five specialist electric breast pumps funded by The Children’s Hospital Charity in 2016.

Breast milk is especially important for these babies, whose intestines are often not fully developed and who are prone to infection in their gut. They need the antibodies in the milk to fight off infection.

Respiratory rates

Respiratory rates

In 2016/17 we funded research which investigates the varying measurement of respiratory rates in children.

Breathing rate is measured by both nurses and doctors when a child is admitted to hospital and gives a good indication of whether immediate care is needed.

Whilst devices are available to monitor temperature, pulse rate and blood oxygen, breathing rate has to be manually counted, which leaves room for human error.

This research explores the methods through which healthcare professionals monitor breathing rate and whether these differences impact the assessment of the child and their care.

EOS X-ray system

EOS X-ray system

In 2017/18, we funded the EOS scanner which is an ultra-low dose 2D and 3D digital X-ray system.

Based on a Nobel Prize-winning invention, the system allows sitting and weight-bearing images of the entire body, including importantly the lower limbs and the spine. 

It imparts an extremely low radiation dose, making it suitable for multiple scans even in very small children. 

It also provides 2D and 3D images and allows rapid in-built calculation of many length and angular abnormalities.

Although it is based in the Children’s Hospital, both children and adults can access the specialists’ piece of equipment, significantly broadening the scope of musculoskeletal research in Sheffield.

DXA Scanner

DXA Scanner

When 12-year-old Ahmad from Derby was born, his parents – and his GP – didn’t know why he was always crying in discomfort. When he started getting unexplained injuries, like broken bones and fractures, his doctor referred him to Sheffield Children's Hospital where he was diagnosed with osteogenesis imperfecta, or brittle bone disease.

Our metabolic bone team are world leaders in the diagnosis and treatment of brittle bones and thanks to £75,000 in donations The Children’s Hospital Charity were able to fund a DXA bone density scanner to keep our hospital at the forefront of medical provision for this illness. The scanner is sensitive enough to scan babies, providing accurate diagnosis from birth that can have a dramatic effect on health outcomes for children with brittle bones.

Patient entertainment systems in the new wing

Patient entertainment systems in the new wing

On surveying parents and patients, 73% wanted a Bedhead TV with the option to use a mobile device with WiFi.

The cost of each system is around £3,000 and the charity provided funding for 72 units in the new wing of the hospital.

The project will now be extended to fund systems in the remaining wards, meaning each child can choose their own entertainment during their stay in our hospital.

Asthma Research

Asthma Research

Patients with a variety of conditions including asthma, arthritis and cancer who use steroid treatments will benefit from research funded by The Children’s Hospital Charity in 2016/17.

Dr Charlotte Elder has found a non-invasive alternative test for adrenal suppression, caused when steroids inhibit the body’s ability to naturally produce the steroid hormone cortisol. During times of illness and stress it can be fatal.

This new test uses a nasal spray and saliva collection. Previously, healthcare professionals used the Short Synacthen Test to check cortisol production, which involved injecting Synacthen into a vein and then taking blood samples which were invasive, time consuming and often unpleasant.

She can now test why adrenal suppression occurs in youngsters, meaning children like Harvey, who use inhalers, receive the best possible treatment.

Action Lab

Action Lab

We funded the Action Lab at The Children’s Hospital in Sheffield – the only dedicated laboratory in our region for testing children’s lung functions. The team sees all kinds of respiratory patients including children with cystic fibrosis.

The lab has exercise testing equipment, including a treadmill with software that makes the lab even more effective in the diagnosis and treatment of cardio-respiratory problems such as exercise-induced asthma. Our team can now offer the most advanced exercise test, allowing them to test each breath a patient takes during exercise.

We also funded a body plethysmograph, a special cubicle which measures the air a child breathes, airway resistance and changes in air pressure. 

Baby Patient Simulator

Baby Patient Simulator

In 2009/10 we funded a high-level patient simulator baby mannequin which combines mechanical and computer software to allow sophisticated modelling of cardiovascular and respiratory systems.

Used by our critical care and Embrace teams to run specialist training, the program increases the opportunities for clinical staff to practice responses to various crisis scenarios.

This equipment enables innovative and extremely valuable training to be provided virtually anywhere. Trainers can then use the comprehensive video and monitoring data that is captured, to show those being trained any potential improvements.

Research into Breatheasy use

Research into Breatheasy use

An exciting project to test the world’s first device for measuring respiratory rate was funded by The Children’s Hospital Charity in 2015/16. Led by Dr Heather Elphick, the study will test the ‘Breatheasy’ device, a new handheld machine that avoids the need to manually check a child’s breathing.

It is hard to measure breathing consistently and the risk of human error is high. This machine will provide a consistent way of doing so.

During the research, the device will be used in a variety of settings to evaluate its performance on children and adults in nurseries, schools, universities, hospital emergency departments, general practice surgeries and ambulances.

The device will be of particular use in the emergency departments, where nursing staff will easily be able to measure each child’s respiratory rate so the most seriously ill children can be identified quickly.

Investigating food allergies

Investigating food allergies

In 2016/17 we funded a research project which explores whether using a skin cream every day from near birth to up to one year of age can reduce the risk of eczema in infants with a family history of allergies.

This study involved a total of 1282 babies and any effects will be observed within their homes by a research nurse when they reach two years of age.

The research will examine whether food allergies can be caused by eczema in the early months of life and whether skin creams can prevent lifelong food allergies.

Sleep workshops

Sleep workshops

Thanks to your donations, we fund regular sleep workshops and sleep studies at our hospital, enabling sleep-deprived youngsters and their parents to get a good night's rest.

One youngster who recently took part in a sleep workshop was Libby and her mum Jenny. Jenny, a working parent, didn't know where to turn after Libby began waking to play for up to three hours every night.

Jenny said: "I left the workshop feeling more positive than I had in months. It was amazing to speak to other families who knew exactly what we were going through, who understood how broken sleep can affect every part of your life. We weren’t alone!”

“The trainers were fantastic, empathetic, knowledgeable and they’d been through it too – they knew! We put a lot of things I’d learnt that day into practice and things did improve"

Defibrillators

Defibrillators

All eight of the hospital’s defibrillators were replaced in 2017 to provide staff with the latest equipment across all areas of the hospital.

Defibrillation is the delivery of lifesaving electrical energy to the heart during an abnormal rhythm or very rapid erratic beating of the heart.

The new defibrillators will provide the emergency clinicians with real-time feedback on their chest compressions which is proven to increase the quality of CPR and improve the chances of saving the patient’s life.

Embrace

Embrace

The Children's Hospital Charity has a long history of fundraising for critical care services and for Embrace – Yorkshire and the Humber’s dedicated infant transport team.

In 1993, the charity donated the first mobile intensive care ambulance, Bear 1. A second appeal for Bear 2 followed, and the £120,000 needed was raised in just three weeks.

When Embrace was set up in 2009 Bear 2 was their first ambulance and since then, the charity has helped keep the service at the forefront of paediatric care.

In 2014, the charity funded a portable cerebral function monitoring machine for to help newborn babies with suspected seizures or severe oxygen deprivation. This helps prevent cerebral palsy and reduce brain injury, and allows treatment to be started before the child arrives at hospital.

The charity has also funded improvements to incubators and snack packs at Embrace, as well as portable chargers for parents on journeys.

Newborn screening

Newborn screening

Each year, we fund up to £250,000 of research into the prevention and cure of childhood illnesses and disease. One of these projects was a pioneering screening programme which detects rare life-threatening diseases in babies.

Thanks to a successful pilot study led by Sheffield Children's Hospital and completed in 2013, all newborn babies in England will be screened for four additional rare but serious conditions. Early detection and treatment for these conditions is potentially life-saving and gives children the best chance of a happy and healthy life.

Professor Jim Bonham, national lead for the project and director for newborn screening at Sheffield Children's NHS Foundation Trust, said: "As a result of this study, we have been able to make an enormous difference to children and their families, in some cases giving them the gift of life."

Clinical Research Facility

Clinical Research Facility

Throughout 2007, the charity raised a huge £400,000 towards building a brand new Clinical Research Facility.

The first of its kind for children in the UK, the facility provides further child-centred research within Sheffield Children's Hospital.

The facility brings together the research of doctors, students, nurses and other health professionals who are helping forge the way in paediatric care.

Narcolepsy Day

Narcolepsy Day

A condition that causes young sufferers to fall asleep spontaneously, often dozens of times throughout the day, was explored at a dedicated event funded by The Children’s Hospital Charity.

Narcolepsy is a rare neurological disorder that affects children from around age six, and lasts into adulthood. Children known to have this condition in the region were invited to attend the first Narcolepsy Day in September 2015.

Professor Heather Elphick, consultant in paediatric sleep medicine at Sheffield Children’s Hospital said: “Some children may fall asleep just two or three times in the day, but have sleeps lasting hours on end that they are very difficult to rouse from”

“Others fall asleep dozens of times a day for just a few seconds at a time. They have to be careful when crossing roads, as they may fall asleep while walking, they need to be careful at heights, when around stairs and they may never be able to drive.”

The sleep clinic exists to control the symptoms of narcolepsy, so the children can go on to live their lives and be independent.”

The first Narcolepsy day brought together 40 guests from 12 families across the region to help learn about the condition and introduce support networks. The children, aged 8 – 16, had an opportunity to meet each other, hear specialist advice on their condition and learn about transitioning into adult care. 

Analysing telescopic rods

Analysing telescopic rods

Telescopic rods are inserted into the bones of patients suffering from Osteogenesis Imperfecta, or Brittle Bone Disease, to treat fractures and deformity. These rods grow as the bones of the child grow, avoiding the need for frequent re-operations. However, the devices currently have a high failure rate and re-operations are needed in up to 50% of cases.

We funded a research project in 2016/17 which analysed the failed rods once they have been removed. The study will support the design of a new and improved Sheffield Rod, with a far lower failure rate. 

Physiotherapy equipment

Physiotherapy equipment

Active challenges ran, walked, cycled and swam their way to funding physiotherapy equipment for two new Therapy Rooms in 2016/17.

The rooms are located on the Surgical and Medical Floor and will treat specialities such as Cystic Fibrosis, Respiratory Medicine, Neurology, Oncology, Burns & Plastics, Orthopaedics, PLRS, Rheumatology and Metabolic Bone Disease.

Physiotherapy and occupational therapy previously took place at patient’s bedside, as well as in public spaces including the corridor and stairs.

Creating a private rehabilitation space will make the activity more fun, as well as making it easier for our patients to achieve their goals. 

Eye Department

Eye Department

Artfelt worked with designer Nick Deakin to create visually stimulating artwork across the Eye Department and provided new furniture, flooring and paint scheme. Nick used bold colours and a simplistic style to create a world of characters running through the department. The project is designed to both engage and stimulate young patients, whilst its placement assists in clinical assessment.

Gym Equipment for Cystic Fibrosis patients

Gym Equipment for Cystic Fibrosis patients

New exercise equipment was funded for Cystic Fibrosis patients in 2015/16, to be used in a specially designed gym as well as in patient’s rooms.

This much-needed equipment will significantly help CF patients get the exercise they need to speed along their treatment.

As some patients are limited to staying in their room and cannot access the gym, the new equipment can be transferred and is taken to their room to help them exercise while they are staying at our hospital.

High Frequency Oscillator Ventilator

High Frequency Oscillator Ventilator

Funded solely by the Bancroft family and the Hathersage community in 2016/17, the new High Frequency Oscillator Ventilator is a specialist piece of equipment used to help children with breathing difficulties or whose lungs are not functioning properly.

Conventional ventilators replicate the patient’s normal breathing patterns whereas the new oscillator functions by giving small volumes of air and oxygen into the lungs at a high frequency, which helps to prevent the lungs from being damaged by high pressures.

Smaller children are automatically given the correct energy during resuscitation and it also provides real time feedback and monitors the rate and depth of chest compressions.

This improves the quality of resuscitation and helps to improve the chances of saving a patient’s life.

Gene Sequencer

Gene Sequencer

In 2012/13 we funded a £500,000 ‘GeneMachine’ system used to diagnose patients with rare and inherited diseases thanks to your generous donations.

The Next Generation Sequencers are two of just 15 at NHS trusts, and are able to screen 100 genes at once for mutations – meaning tests for suspected genetic disorders can now be returned within two weeks instead of a year.

Dr Ann Dalton, consultant clinical director of Genetics at Sheffield Children’s NHS Foundation Trust, said: “The machine has revolutionised genetic science for our patients.

It will mean a lot to some of our patients waiting on a confirmed diagnosis or changes in treatment”.

Hydrotherapy Pool

Hydrotherapy Pool

Georgia likes dancing and socialising – doing all the things that 13-year-olds like to do. But a condition called juvenile idiopathic arthritis means she her joints often ache and leave her in pain.

In 2012/13, thanks to your donations, we funded The Children’s Hospital’s hydrotherapy pool at Ryegate House in Sheffield.

The pool provides a vital rehabilitation tool and sensory experience for children seen by the therapy team and is used in the treatment of many different conditions.

Thanks to regular swimming sessions, Georgia can now build her strength and keep active, without putting too much pressure on her joints.

Oliver Ward, physiotherapist at Sheffield Children's Hospital, said: “We find that our patients are able to exercise more rigorously in the pool than on land, which helps them avoid secondary problems such as weight gain, weakness and loss of cardiovascular fitness which risk future arthritis flares.”

Brain Lab

Brain Lab

Thanks to our charity patron, Michael Vaughan, who raised an incredible £215,000 with a China trek in 2012, we funded ground-breaking surgical equipment for the theatre department.

The brain lab allows our surgeons to see a unique, 3D, real-time map of the area they are operating on – making our hospital one of the most advanced centres for children’s brain tumour removal and complex brain surgery.

Mr Hesham Zaki, consultant neurosurgeon at Sheffield Children’s Hospital, said: “It’s like a GPS system for the brain. We can use it to identify the best, most accurate route to a tumour so we can make smaller incisions.

“For the patients and their families, it means a faster recovery time, a shorter stay in hospital and better outcomes". 

Narcolepsy Family Day

Narcolepsy Family Day

Narcolepsy is a rare neurological disorder that affects children from around age six, and lasts into adulthood. Children known to have this condition in the region, were invited to attend the first Narcolepsy Day in September 2016, run by Sheffield Children’s Hospital NHS Foundation Trust and funded by The Children’s Hospital Charity.

Sheffield Children’s Hospital Sleep service is a tertiary sleep diagnostic unit, seeing children with sleep disorders from all over the north in a specialist assessment and treatment centre. Children with narcolepsy can come for a 24-hour sleep assessment, which will help inform the best mode of treatment to control the condition.

Professor Heather Elphick, consultant in paediatric sleep medicine at Sheffield Children’s Hospital, said: “Narcolepsy is a condition that results in an excessive need for sleep. Children can fall asleep suddenly and in unusual circumstances. It can also cause a loss in muscle tone which causes them to collapse or fall, and can affect their face causing facial drooping which can be embarrassing.

“It can cause difficulty with school if they are constantly falling asleep. They tend to gain weight as their appetite is increased as a symptom of the condition, causing them to binge eat. This can all combine to cause psychological issues and they can have difficulty with socialising as they are falling asleep so often.”

Narcolepsy happens to people with a genetic predisposition and will occur out of the blue or come after an illness. It is caused by a depletion of the chemical hypocretin. It can happen at any age, and when it occurs it is for life. There is no cure, but with the right assessment and treatment it can be effectively managed.

Professor Elphick added: “Some children may fall asleep just two or three times in the day, but have sleeps lasting hours on end that they are very difficult to rouse from. Others may fall asleep dozens of times a day for just a few seconds at a time. They have to be careful when crossing roads, as they may fall asleep while walking, they need to be careful at heights, when around stairs and they may never be able to drive. The sleep clinic exists to control the symptoms of narcolepsy, so the children can go on to live their lives and be independent.”

The first Narcolepsy day brought together 40 guests from 12 families across the region to help learn about the condition and introduce support networks. The children, aged 8 – 16, will have an opportunity to meet each other, hear specialist advice on their condition and learn about transitioning into adult care.

Sir Quentin Blake

Sir Quentin Blake

Our in-house arts programme, Artfelt, has worked with one of Britain’s best-loved illustrators, Sir Quentin Blake to bring some of his legendary artwork into Sheffield Children’s Hospital.

Blake has written or illustrated more than 300 books, but is best known for his collaborations with Roald Dahl, which sparked the imaginations of generations of children with depictions of the BFG, Matilda and the Twits.

The commission for Sheffield Children’s Hospital includes four large-scale wall vinyl illustrations and 11 framed prints. They can be found throughout the new wing of the hospital in waiting and parents’ rooms and on the ward walls. The work forms part of Artfelt’s mission to transform the hospital’s walls and spaces to help children recover in an environment tailored to them.